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10 Patient Rights in America’s Healthcare System. From Privacy to Medical Rights in America’s Healthcare System by Trisha Torrey Link to Article
The Role of a Patient Advocate from the Centers for Medicare and Medicaid Services (CMS) Link to article
How to be your own health care advocate. Resources from the Joint Commission’s Take Charge Campaign. Link to Article
Caring Conversations Workbook from Center for Practical Bioethics Link
Hospice and Palliative Care End-of-Life Information and Resources from the National Hospice and Palliative Care Organization. Link
The Life File from the folks at Death with Dignity Link
Medical Aid in Dying
Rethinking Medical Aid in Dying: What Does It Mean to ‘Do No Harm?’Dallas R. Lawry, DNP, FNP-C, AOCN Link
Death with Dignity link
A plethora of resources that look at grief from Re-Imagine Link
The American Way of Death Revisited by Jessica Mitford
The Art of Dying Well by Katy Butler
Being Mortal. Medicine and What Matters Most in the End by Atul Gawande Link
A Beginner’s Guide to the End BJ Miller and Shoshana Berger
Being with Dying by Joan Halifax
A Dignified Ending Taking Control Over How We Die by Lewis Mitchel Cohen
Final Gifts: Understanding the Special Awareness, Needs, and Communications of the Dying by Maggie Callanan & Patricia Kelley
The Five Invitations by Frank Ostaseski Link
Natural Causes by Barbara Ehrenreich
Smoke Gets in Your Eyes: And Other Lessons from the Crematory by Caitlin Doughty
The End Game. Facing an inevitable outcome, terminally ill patients meet extraordinary medical practitioners seeking to change our approach to life and death. Available on Netflix
Coco, a 2017 Pixar production inspired by the Mexican Holiday; Día de Muertos. Available on Netflix.
Extremis. A powerful documentary exploring end-of-life decision making in a hospital setting. This short documentary examines how medical teams communicate with one other and families about end-of-life decisions and the crucial choices they must make. Available on Netflix.
Being Mortal Frontline PBS Documentary based on Atul Gawande’s book. Link
Tuesdays with Morrie. Available on YouTube
Ask the Mortician. Caitlin Doughty’s You Tube Channel. A new perspective of the funeral industry. Link
End of Life University. Real talk about life and death. Link
The Grave Woman. Joél Simone Anthony is a licensed funeral director and sacred grief practitioner in Atlanta, Georgia.
Everyone Dies is a nonprofit organization with the goal to educate the public about the processes associated with dying and death, empower regarding options and evidence-based information to help them guide their care, normalize dying, and reinforce that even though everyone dies, first we live, and that every day we are alive is a gift. Link